O medicamento sildenafila está em falta em diversas cidades do país, o que coloca em risco a vida de pessoas que vivem com Hipertensão Pulmonar
Pacientes de todo o país vêm sofrendo com a falta de medicamentos para tratar a Hipertensão Arterial Pulmonar (HAP), uma doença rara, grave e progressiva. Um dos medicamentos usados no tratamento da doença é a sildenafila, cuja compra e distribuição é de responsabilidade do Ministério da Saúde.
A HAP não tem cura, mas os medicamentos aumentam a sobrevida dos pacientes, e são de extrema importância para o tratamento, principalmente porque ajudam a controlar os sintomas, como falta de ar, fadiga, tontura e episódios de desmaio, que afetam diretamente a qualidade de vida e o dia a dia das pessoas.
A ABRAF (Associação Brasileira de Apoio à Família com Hipertensão Pulmonar e Doenças Correlatas) registrou reclamação na ouvidoria do SUS e solicitou informação sobre a compra da medicação via Lei de Acesso à Informação Pública no Ministério da Saúde. Além disso, a organização apresentou uma denúncia ao Ministério Público Federal.
Flávia Lima, presidente da ABRAF, afirma que não é a primeira vez este ano que há interrupção do fornecimento de sildenafila, utilizado como primeira linha de tratamento. “O desabastecimento de medicamentos para a hipertensão pulmonar tem sido constante, infelizmente. A hipertensão pulmonar é uma doença progressiva e potencialmente fatal e a interrupção do tratamento coloca a vida dos pacientes em risco”, afirma.
Segundo estudo “Vivendo com hipertensão pulmonar: a perspectiva dos pacientes”, realizado pela ABRAF em 2019, uma das principais preocupações dos pacientes está relacionada ao acesso à medicação. Eles relatam situações de muita burocracia, de falta de informação dentro da rede de saúde, de longo tempo de espera para começar o tratamento. E quando começam o tratamento, constantemente os medicamentos estão em falta. Para 50% dos entrevistados na pesquisa, o problema que mais os preocupa é a falta de medicação.
Aline Câmara mora em Campinas e faz tratamento para HAP desde 2011. Ela é acompanhada pelos médicos da Santa Casa da Misericórdia, em São Paulo. “Nesses 10 anos de tratamento, foram poucas às vezes em que fiquei sem remédio, porém isso tem se tornado um problema constante nos últimos anos”. Segundo ela, desde agosto a sildenafila está em falta na farmácia de Alto Custo de Campinas. “É um remédio essencial para meu tratamento e para o controle da doença, por isso é gravíssimo o atraso na compra desse medicamento. É dever do Ministério da Saúde garantir que os pacientes com doenças raras e graves tenham acesso ao tratamento, sem atrasos ou faltas, mas fica claro o descaso do Ministério com a vida dessa parte significativa da população. Eu, como todos pacientes com HAP, precisamos que a distribuição da sildenafila seja normalizada urgentemente, pois a falta desse remédio pode custar a nossa vida”.
A sildenafila é um medicamento de alto custo, fornecido pelo Sistema Único de Saúde (SUS). São Paulo, Paraíba e Ceará foram as regiões mais afetadas até o momento.
A Hipertensão Pulmonar
A HP é um termo abrangente e inclusivo para um grupo de várias doenças crônicas que afetam os pulmões e o coração. Somente no Brasil, estima-se que cerca de 2 milhões de pessoas convivam com a doença. Algumas formas ou “subtipos” da HP são raras, bem como de desenvolvimento rápido, debilitantes e fatais. Inclusive, a taxa de mortalidade de pacientes com a doença é elevada, chegando a um percentual de 43% depois de cinco anos.
Na HP, as artérias que levam o sangue do coração aos pulmões estreitam por razões que ainda não são totalmente compreendidas. O coração luta para bombear sangue através das artérias reduzidas, resultando em pressão arterial alta nos pulmões e dilatação do coração. Com o tempo, o coração sobrecarregado de trabalho se desgasta, podendo causar insuficiência cardíaca e morte.
Embora seja mais comum em jovens adultos e em mulheres, a doença também afeta pessoas de diferentes idades. Os sintomas da Hipertensão Pulmonar, que podem incluir falta de ar, fadiga, tontura e episódios de desmaio, variam de paciente para paciente e, normalmente, não ocorrem até a doença ter progredido, o que atrasa o tratamento. Como esses sintomas também são comuns em outras enfermidades, como asma, bronquite ou insuficiência cardíaca, o diagnóstico da HP ainda é difícil de ser reconhecido.
No Brasil, a ABRAF é a Associação que luta por melhores condições para os pacientes, promovendo diversas ações e eventos para chamar a atenção da sociedade e dos governantes para a causa. “A Hipertensão Pulmonar é uma doença bastante grave, mas ainda pouco conhecida pela população. Nosso objetivo é conscientizar as pessoas e ajudar os pacientes, colocando a doença em evidência, a fim, também, de pressionar o governo a proporcionar um cenário mais digno para quem luta contra a HP no Brasil”, explica Paula Menezes, presidente da ABRAF.
A doença, mesmo sem cura, não tira o direito dos pacientes de viverem melhor, aprendendo a conviver com a patologia e controlando seus sintomas. Por isso mesmo, o uso dos medicamentos é necessário e importantíssimo para garantir uma qualidade de vida melhor.
Sobre a ABRAF
I just like the valuable info you supply to your articles.
I’ll bookmark your blog and take a look at once more here regularly.
I’m rather certain I will be told a lot of new stuff right here!
Good luck for the following!
Hello, Neat post. There is a problem with your site in internet explorer, may test this?
IE still is the market chief and a big section of other folks
will leave out your great writing due to this problem.
Why visitors still use to read news papers when in this technological world all is
available on web?
Hi there, I desire to subscribe for this weblog to get newest updates, so where can i do it please assist.
Hi! Someone in my Myspace group shared this website with us so I came to give it a look.
I’m definitely loving the information. I’m bookmarking and
will be tweeting this to my followers! Great blog and amazing design and style.
Tanaman ini dapat Anda budidayakan dalam pot.
Thіs is my first time pay a visit at here and i am in fact іmpressed to read everthing at allone place.
Alsso visit myy webpage … http://Www.livewellcbdsgummies.org
Hello Dear, are you truly visiting this web site on a regular basis, if so afterward
you will definitely take fastidious know-how.
Have a look at my web-site :: 플레이카지노
I absolutely love your site.. Excellent colors & theme. Did you build this
amazing site yourself? Please reply back as I’m trying to
create my very own site and would like to know where you got this
from or just what the theme is named. Thanks!
Appreciate it for all your efforts that you have
put in this. Very interesting information.
Also visit my web page :: pop music
I am actually glad to glance at this web site posts which carries plenty
of useful facts, thanks for providing these statistics.
I have been exploring for a little bit for any high-quality articles or weblog posts in this kind of house .
Exploring in Yahoo I eventually stumbled upon this website.
Reading this information So i’m happy to express that I’ve a very just
right uncanny feeling I discovered exactly what I needed.
I most unquestionably will make certain to do not overlook this web site and provides it a glance
regularly.
Very good article! We are linking to this particularly great post on our website.
Keep up the great writing.
With havin so much content and articles do you ever run into any
issues of plagorism or copyright infringement? My site has a lot of exclusive content I’ve either created myself or outsourced but
it seems a lot of it is popping it up all over the web without my authorization. Do you know any solutions to help prevent content from
being stolen? I’d really appreciate it.
Also visit my web site 모바일바둑이
Tremendous issues here. I am very glad to peer
your post. Thank you so much and I am taking a look forward to contact you.
Will you please drop me a e-mail?
You could certainly see your enthusiasm in the work you write.
The world hopes for more passionate writers such as you who aren’t afraid to
mention how they believe. Always go after your heart.
I always spent my half an hour to read this blog’s posts everyday along
with a cup of coffee.
Hi there Dear, are you really visiting this site daily,
if so after that you will absolutely obtain good experience.
Feel free to visit my website :: 먹튀검증
Woah! I’m really loving the template/theme of this blog.
It’s simple, yet effective. A lot of times it’s very hard to get that “perfect balance” between user
friendliness and visual appearance. I must say that you’ve done a amazing job
with this. Also, the blog loads very quick for me on Internet explorer.
Outstanding Blog!
Wow! This blog looks exactly like my old one! It’s on a entirely different subject
but it has pretty much the same layout and design. Superb choice of colors!
What’s up to every one, it’s in fact a good for me to pay
a quick visit this web site, it includes helpful Information.
My web site; 메이저사이트
Hmm is anyone else having problems with the pictures on this blog loading?
I’m trying to find out if its a problem on my end or if it’s the
blog. Any responses would be greatly appreciated.
เว็บตรง สล็อตฝากถอน ไม่มี
ขั้นต่ำ 1 บาทก็ ถอนได้ เล่นสล็อตออนไลน์แล้วกดปุ่มหมุนเพื่อวางเดิมพันเพื่อหมุนล้อ จากนั้นสัญลักษณ์ของวงล้อของแต่ละเกมจะค่อยๆหยุด หากสัญลักษณ์นัดหยุดแต่ละเส้นกษัตริย์ในเกมนี้คุณจะได้รับโบนัสจากการหมุนสล็อต คุณสามารถดูสายการชำระเงินในแต่ละตารางเกม เกมสล็อตถือว่าง่ายต่อการเล่นด้วยการเล่นที่ง่าย
Awesome blog! Is your theme custom made or did
you download it from somewhere? A design like yours with a few simple adjustements
would really make my blog stand out. Please let me know where you got your theme.
With thanks
This is really interesting, You are an overly professional blogger.
I have joined your feed and stay up for in quest of extra of your fantastic post.
Also, I have shared your website in my social networks
We’re a group of volunteers and starting a new scheme in our community.
Your site offered us with valuable info to work on. You’ve done a formidable
job and our whole community will be grateful to you.
At this moment I am going away to do my breakfast, when having my breakfast coming yet again to read other news.
Thankfulness to my father who stated to me about this weblog,
this webpage is genuinely remarkable.
Genuinely when someone doesn’t understand afterward its up to other people
that they will assist, so here it happens.
My brother recommended I might like this web site.
He was entirely right. This post actually made my day.
You can not imagine simply how much time I had spent for
this information! Thanks!
What i don’t realize is if truth be told how you’re not
really much more well-liked than you may be right now.
You are very intelligent. You know thus significantly
in terms of this matter, made me personally imagine it from so many numerous angles.
Its like men and women aren’t interested except
it is one thing to accomplish with Lady gaga! Your personal stuffs nice.
At all times handle it up!
Hi there, just became alert to your blog through Google, and found that it is really informative.
I’m going to watch out for brussels. I will be grateful if you continue this in future.
Many people will be benefited from your writing.
Cheers!
Hi, Neat post. There is an issue along withh your website in web
explorer, might check this? IE noneteless is the market chief and a good section of folks will leave out your magnificent writing due to this problem.
Here is my weeb blog; casino malaysia
Thanks for finally talking about > Falta de medicamentos no Brasil ameaça
vida de pacientes de Hipertensão Pulmonar ⋆ Jornal do Momento News < Loved it!
Hey! I could have sworn I’ve been to this site
before but after reading through some of the post I realized it’s new to
me. Anyways, I’m definitely delighted I found it and I’ll
be book-marking and checking back frequently!
This is a very good tip particularly to those new to the blogosphere.
Brief but very accurate info… Thanks for sharing this one.
A must read post!
Hello! This is my first comment here so I just wanted to give a quick shout out and say I genuinely enjoy reading through
your blog posts. Can you recommend any other blogs/websites/forums that deal with the same subjects?
Thanks a ton!
Hi my family member! I wish to say that this post is awesome, great written and come with approximately all
important infos. I’d like to look extra posts like this .
I think that is one of the so much significant
info for me. And i’m satisfied studying your article.
However should commentary on few basic things, The site taste is wonderful, the articles is in point of fact excellent :
D. Just right activity, cheers
Politechnika Częstochowska
ul. J.H. Dąbrowskiego 69
42-201 Częstochowa
NIP: 573-011-14-01
Informacje
bip.svgBiuletyn Informacji Publicznej
Zamówienia Publiczne
Informacje o cookies
Deklaracja dostępności
Inspektor Ochrony Danych
SARS-CoV-2
Wydziały
Wydział Budownictwa
Wydział Elektryczny
Wydział Inżynierii Mechanicznej i Informatyki
Wydział Inżynierii Produkcji i Technologii Materiałów
Wydział Infrastruktury i Środowiska
Wydział Zarządzania
logo ePUAP
Adres skrytki podawczej Politechniki Częstochowskiej w systemie ePUAP: /PolitechnikaCzestochowska/SkrytkaESP
Politechnika Częstochowska
ul. J.H. Dąbrowskiego 69
42-201 Częstochowa
NIP: 573-011-14-01
Informacje
bip.svgBiuletyn Informacji Publicznej
Zamówienia Publiczne
Informacje o cookies
Deklaracja dostępności
Inspektor Ochrony Danych
SARS-CoV-2
Wydziały
Wydział Budownictwa
Wydział Elektryczny
Wydział Inżynierii Mechanicznej i Informatyki
Wydział Inżynierii Produkcji i Technologii Materiałów
Wydział Infrastruktury i Środowiska
Wydział Zarządzania
logo ePUAP
Adres skrytki podawczej Politechniki Częstochowskiej w systemie ePUAP:
/PolitechnikaCzestochowska/SkrytkaESP
I am curious to find out what blog platform you are using?
I’m having some small security issues with my latest blog and I would like to find something more safe.
Do you have any suggestions?
І mսst thаnk ｙоu for tһe efforts you’νe pᥙt in writing thiѕ website.
Ӏ’m hoping to check оut the ѕame high-grade cοntent from you in tһｅ future as well.
In truth, your credative writing abilities һɑs encouraged me to ցet my very օwn site now 😉
Also visit mу web-site – Harfli Pastalar
Hi, i think that i saw you visited my website thus i came to “return the
favor”.I am attempting to find things to improve my site!I suppose its ok to use some of your ideas!!
Here is my blog post … 토토사이트
This piece of writing will help the internet people for
building up new weblog or even a weblog from start to end.
Hi my friend! I wish to say that this post is awesome, great written and include approximately
all important infos. I’d like to see extra posts like
this .
I am regular reader, how are you everybody?
This piece of writing posted at this website is really good.
Hello to all, how is the whole thing, I think every one is getting more from this website, and your views are fastidious designed for new users.
Have a look at my website: 카지노 도메인
I just could not depart your site prior to suggesting
that I extremely enjoyed the usual information an individual supply on your visitors?
Is going to be back often in order to check out new posts
Hi I am so happy I found your webpage, I really found you by accident,
while I was searching on Aol for something else, Regardless I am here now and would just like to say many thanks
for a marvelous post and a all round thrilling blog (I also love the theme/design), I don’t have time to look over it all at the
moment but I have bookmarked it and also added your RSS feeds, so when I have
time I will be back to read much more, Please do keep up the great job.